Headless sculptures in Chicago - Alzheimers Conference

Reflections on AAIC 2018

The picture you see at the head of this blog post is a great piece of art in Chicago – one of many throughout the vibrant city!

I was particularly drawn to the sculpture as it represents so well how it can sometimes feel doing a small piece of research into a topic which really can feel like a mine field. I know there’s so much happening around the world towards improving dementia care, but I don’t get to see it, and with so many bits of information coming from so many sources I sometimes wonder: are we all walking around in random directions, unaware of the others around us, trying to head for the same place?

Well, earlier in the summer, I felt both privileged and relieved to go to such a well-attended, global and informative conference: Alzheimer’s Association International Conference 2018.

5600 people from 67 countries with one vision, gathered in one place!

Not only did I attend, but I was able to present my own research findings along side other presentations about improving care for people with dementia.

Read more

Mental Health and Dementia Research

Mental Health and Dementia

I was recently invited to be part of a Q&A panel at an evening discussing mental health at my church – Lansdowne Church, Bournemouth (to watch a video of the full event, click here).

The questions for me primarily focused around the issue of mental health and dementia – a very under-researched, under-diagnosed and misunderstood topic! I did my best, within my knowledge and understanding, to answer the questions that came my way, but it inspired me to look a bit further into the issue and share a blog post about it… I hope you find my musings helpful!

Mental health and dementia – what is happening in the brain?

Firstly lets take a look at what is happening in the brain for people with either dementia or living with mental health problems. For a simple and visual summary of how the brain works see the following image:

I’m not a neuro-psychiatrist (as much as I’d love to be!) and do not claim to have extensive knowledge of the brain and its workings! But two things I’d like to clarify about mental health and dementia before I start:

Mental illnesses are disorders of the brain, dementia is a disorder of the brain: it is inevitable that they will overlap.

Mental illness and dementia are NOT the same thing. 

Read more

“I will forget today, but that doesn’t mean today doesn’t matter”

The week before Christmas I had the privilege of being interviewed on Premier Radio about dementia and encouraging those who are looking after loved ones with dementia over the Christmas period.

You can read the full transcript below, and also listen online here (the interview starts after 9m40s).

There is much more that could have been said so here I summarize, and expand, in 3 key points. I hope you may find them helpful and encouraging as we enter into the New Year.

Read more

sweden beauty lake river trees - Dementia Care Research

Dementia Summer School in Sweden #demsum

Sweden. A beautiful land of trees, lakes, more trees and more lakes.

The country is also home to at least two internationally-renowned ‘centres of excellence in dementia research’, in Linköping University and the Karolinska Institute, and it is the land which I was honored to visit last week!

The Alzheimer’s Society and NIHR provided funding for an amazing opportunity for Dementia PhD Researchers around the UK and Sweden to get together to learn, network and be inspired. I am privileged to have been a part of it!

So, apart from taking away a selection of Swedish vocabulary, exploring the beautiful city of Norrköping, and enjoying a stunning train journey from Stockholm to Norrköping at sunset, here are my reflections on a fantastic few days:

Read more

Valuing the whole person – The Enriched Model

Last June I wrote a blog post about changing the world through my PhD. I still believe my research is an important step to making change to wider practice, and to getting a job in which I can influence positive change.

But changing the world doesn’t have to be such large scale! We can change another person’s world just by treating them as a person!

So how can we treat our patients more like people? We start by looking beyond the task we’re performing to the person we are with.

Read more

Understanding Eating in Dementia – more than just memory loss

Long ago… back in the year 2015… I completed the University of Tasmania’s ‘Understanding Dementia Massive Open Online Course (MOOC)’ – something I would highly recommend to anyone from any walk of life who has an interest in dementia or dementia care.

Particularly impressed by Dr Jane Tolman’s presentation on the different domains of dementia, I felt it was something everyone should be familiar with!

Read more

Reflections on the 10th UK Dementia Congress

Last Tuesday morning I excitedly boarded the train to begin my journey to the 10th UK Dementia Congress in Telford. I was looking forward to diving into the Dementia world, meeting new people as well as those I have connected with on Twitter. The programme looked fantastic and it was the first residential conference I have attended – expectations were high!

On Thursday evening I boarded the train home – flagging and exhausted, with a lot to process! My feelings during the week were so mixed.  At times I felt the buzz of enthusiasm, of future prospects; at other times I felt the despair and struggles still going on all around us in dementia care – not to mention to the health and social care systems as a whole!

Read more

Can phd change the world? Occupational Therapist mug says yes!

Ready to change the world – challenging nutritional care in acute hospitals

On overhearing a 3rd year PhD student saying that “when you start your PhD you think you will change the world but you very quickly learn otherwise, realising your work will be of little significance”, I was horrified and disappointed – what is the point of what I’m about to embark on? Why spend 4 years of my life working towards something which will not have any impact?

Read more